Last night was one of the most uncomfortable of my life…
I tried to pad this awful bench with hospital pillows and my yoga mat, but it didn’t work. I was so exhausted that I fell asleep shortly after Annie did, but then she woke up at 2:40 AM and asked me to take her to the bathroom, and I could not get comfortable enough to ever fall back asleep. Fortunately, an early morning facebook plea had Hannah (ever my Chicago hero!) bringing me a mattress this afternoon. We might have gotten some curious looks carrying it up from the parking garage, but I don’t care. I can’t wait to actually sleep in comfort tonight!
And Annie had her first OT session and two PT sessions! The therapists are all amazing here. Maddie, her head OT, wants to work a ton on trunk strength. Marley, her head PT, brought in the orthotics consultant right away, and we’re getting new braces made here ASAP. We’re going to try solid, non-hinged AFOs this time. She said how important it is to re-train her neural pathways so she has better gait patterns, so Annie can’t do any standing or walking on her own, even if she’s doing them in PT, until they give the go-ahead. It might be weeks. In the meantime, she gets to ride around in this cool prone cart that makes her look like she’s flying! Any time on her tummy is good for her core, so we’ll be traveling on this for a while!
Everyone on the staff is super friendly, and they all of course love Annie and make excuses to come talk to her because she gives out hugs to everyone. We found the playroom and picked up a toy and a book of puzzles, so we won’t get sick of my bag of tricks so quickly. I had some fresh air and sunshine with Hannah (and will not be going in to most of her therapy sessions at this point, so will have a chance to get out during those three hours most days), so here’s hoping that we both get good rest tonight.