I have so many little matters to tell you of, that I cannot wait any longer before I begin to put them down.
Posted in Annie on Aug 1st, 2024
I realized that I should post an update for non-family members who might still be checking in on Annie. Our pediatrician is a rockstar and straightened everything out, so we finally started daily PT with our home therapy center this week. We have it from 8:45-9:30 M-F and are working with Jeff and his colleague […]
Posted in Annie on Jul 22nd, 2024
We are enjoying our time back home, and boy, enough stuff has been happening in the election law world this past week or two that Derek is definitely glad to be able to concentrate on work full-time now that I’m home. But the saga of Annie’s care is continuing to frustrate us. Today is her […]
Posted in Annie on Jul 18th, 2024
Yesterday was a whirlwind. We woke up at RMH, hoping to get word about starting therapies, assuming we were there for at least another week and a half, hoping for clarity moving forward. By mid-morning, I was calling and leaving messages and trying to get in touch with the scheduler at Shirley Ryan outpatient rehab, […]
Another day without news from Shirley Ryan Outpatient. I assume our insurance is being difficult. After feeling close to despair yesterday morning, I determined to work with Annie on home exercises as much as possible at RMH. And yesterday volunteers brought Pizzaria Uno for dinner, so we had a meal she was (mostly) willing to […]
Posted in Annie on Jul 15th, 2024
We were home for about 44 hours, then the whole family headed back to Chicago for church downtown, a weekend in Wheaton with our old ND Law/Kirkland friends, and then dropping Annie and me off at Ronald McDonald House for another week. This is Annie right after waving off the family, happy to be spending […]
Posted in Annie on Jul 11th, 2024
Today Annie had her last four therapy sessions and graduated from inpatient rehab! They worked a lot on home life skills, like walking up and down stairs, navigating ramps with the walker, pushing the walker across (fake) grass, sit to stands, and standing without holding on to anything. Marley gave me a nice list of […]
Posted in Annie on Jul 10th, 2024
Since we’re in our last week of rehab here at the inpatient clinic, I’ve been going back and observing more of the PT and OT sessions and taking pages of notes for the types of things we need to be working on at home. Some things of note: Annie needs to be in her braces […]
Posted in Annie on Jul 9th, 2024
After lots of discussions with insurance, many calls from our hard-working Dr Revivo and the care management team, and a lot of prayer, we have ironed out the rest of our time here. We are being discharged from inpatient therapy on Friday, as planned, then we’ll be starting day rehab on Monday. It’s not at […]
Posted in Annie on Jul 5th, 2024
The good news: After getting calls every morning this week from Ronald McDonald House, telling me that there are no available rooms and no anticipated check-outs, I got a call out of the blue at 5 pm tonight, telling me they have a room for me tonight! I had sent our suitcase home with Derek […]
We were feeling pretty down after the family left on Sunday, but on Wednesday afternoon, we ubered up to Eleanor’s for the afternoon, and Annie played with the girls while I got in my baby cuddles and added some books to my list and enjoyed adult conversation with Eleanor and ate yummy homemade food! Then […]