Another day without news from Shirley Ryan Outpatient. I assume our insurance is being difficult. After feeling close to despair yesterday morning, I determined to work with Annie on home exercises as much as possible at RMH. And yesterday volunteers brought Pizzaria Uno for dinner, so we had a meal she was (mostly) willing to […]
Category Archive for 'Chicago'
We were feeling pretty down after the family left on Sunday, but on Wednesday afternoon, we ubered up to Eleanor’s for the afternoon, and Annie played with the girls while I got in my baby cuddles and added some books to my list and enjoyed adult conversation with Eleanor and ate yummy homemade food! Then […]
Sunday at the MSI
Posted in Chicago on Jun 30th, 2024
Today we were late for church not because Derek and the kids didn’t make it here in time, but because the doctor hadn’t put a note into Annie’s file that she was good to leave the hospital without him having eyes on her first. He doesn’t come in to work until 9, and church starts […]
Today was a mercifully good day here. I’ve been homesick and lonely, and despite a couple good phone dates and some quick but wonderful drop-ins from Hannah, it’s been extra hard to wait to see Derek and the big kids again tomorrow! But today God was good. I had a coffee date with my friend […]
The sad news: This was the Sunday that Derek and the kids couldn’t come in to see us, so we’re both feeling a little more homesick today than usual. The good news: Annie slept through the night last night without any potty breaks! Thank you, Jesus. Yesterday, I was pretty much a basket case of […]
Derek and the kids drove over to spend the day with us, and oh, how glad we were to see everyone! We went to church at HTC, where Pastor Jon and Amy and two couples from our old small group were the only familiar faces after 14 years away. But it was so welcoming–several people […]
First Saturday at Shirley Ryan
Posted in Annie, Chicago, Homeschooling on Jun 15th, 2024
Annie will usually only be scheduled to have two hours of therapy on Saturdays, but they told us they could fit her in for extra sessions if they had availability and we were interested. Obviously my reply was an emphatic YES! Today she was so excited to get to have two sessions of PT AND […]
First of all, Hannah’s mattress was oh, so comfortable after a week of sleeping on benches too short, narrow, and or hard for the average adult human. Hallelujah! Annie did wake up at 12:30 am and 5, insisting on being taken to the bathroom. I had supplemented her measly meals with Nourish through her g-tube […]
Last night was one of the most uncomfortable of my life… I tried to pad this awful bench with hospital pillows and my yoga mat, but it didn’t work. I was so exhausted that I fell asleep shortly after Annie did, but then she woke up at 2:40 AM and asked me to take her […]
Annie Muller — Room 1807 355 E Erie St Chicago, IL 60611