I have so many little matters to tell you of, that I cannot wait any longer before I begin to put them down.
Posted in Annie on Jun 19th, 2024
Yesterday Annie was inconsolable in the morning as the staff orthotist, Miss Helenlyn, casted Annie’s legs in order to make new AFO braces. Can you see her tear-streaked face behind the shells? Then in the afternoon, she was beyond thrilled to meet Spider-Man, who came to visit all the kids on the floor. She was […]
Posted in Annie on Jun 18th, 2024
Annie was a busy girl yesterday–she was scheduled for four therapy sessions (including music therapy!), but she got to have an extra hour because one of the therapists had an opening and wanted to play with her! With five hours of therapy for Annie yesterday, you would have thought that it would have been a […]
Posted in Annie on Jun 17th, 2024
I got to talk to the whole floor of doctors and therapists to discuss Annie’s progress at the weekly team conference this morning. They’re happy with how she’s done thusfar, perhaps ahead of schedule, so we’re looking at an initial discharge date of July 12. (Ironically, Derek and all the kids are all booked that […]
Derek and the kids drove over to spend the day with us, and oh, how glad we were to see everyone! We went to church at HTC, where Pastor Jon and Amy and two couples from our old small group were the only familiar faces after 14 years away. But it was so welcoming–several people […]
Posted in Annie, Chicago, Homeschooling on Jun 15th, 2024
Annie will usually only be scheduled to have two hours of therapy on Saturdays, but they told us they could fit her in for extra sessions if they had availability and we were interested. Obviously my reply was an emphatic YES! Today she was so excited to get to have two sessions of PT AND […]
First of all, Hannah’s mattress was oh, so comfortable after a week of sleeping on benches too short, narrow, and or hard for the average adult human. Hallelujah! Annie did wake up at 12:30 am and 5, insisting on being taken to the bathroom. I had supplemented her measly meals with Nourish through her g-tube […]
Last night was one of the most uncomfortable of my life… I tried to pad this awful bench with hospital pillows and my yoga mat, but it didn’t work. I was so exhausted that I fell asleep shortly after Annie did, but then she woke up at 2:40 AM and asked me to take her […]
Annie Muller — Room 1807 355 E Erie St Chicago, IL 60611
Posted in Annie on Jun 12th, 2024
I feel like everyone we talk to has a different timeframe for how long this inpatient rehab will last. The Riley doctor who referred us to Lurie told me 6-8 weeks, Dr Raskin initially told us 2-6 weeks, the Shirley Ryan PT doing her pre-op eval said that 6-8 was standard protocol after SDRs and […]
We got the word at breakfast that we were moving over to Shirley Ryan at noon! The EMTs came and strapped Annie and Michael the Koala onto the stretcher. Annie was not a big fan of the sirens in the ambulance bay, but now she can say that she rode in an ambulance for 20 […]