I have so many little matters to tell you of, that I cannot wait any longer before I begin to put them down.
Posted in Annie on Jun 11th, 2024
We just got the call that our insurance approved our transfer to Shirley Ryan, but they don’t have any open rooms for us tonight. So they’ll have a meeting tomorrow at 10 am to assess rooms, and hopefully we’ll know by lunchtime if we’re able to move tomorrow. Annie and I are bummed to have […]
Posted in Annie on Jun 11th, 2024
We just had a bath, washed her hair, put her in shorts, and took off the bandage over her incision site! She’s much more like her normal self today, has had just minimal meds, and is hoping insurance comes through so we can transfer to Shirley Ryan today.
Posted in Annie on Jun 10th, 2024
Yesterday afternoon, Annie was daring enough to transfer into her stroller for a walk around the 19th floor, then down to the 12th floor for the family fun room. We picked up a puzzle, and when it got too loud in the family room, we came back up to the 19th floor lounge. I lesson […]
Posted in Annie on Jun 9th, 2024
Last night went better than our first night here. She is on more meds for pain as well as muscle relaxers, and they only had to come check her every four hours instead of every hour. The vitals machine did wake her with its beeping at 2:30 and 3:30 am, and both times she said […]
Posted in Annie on Jun 8th, 2024
We had a visit from the PT and OT at about 11:30 to get Annie to sit up for the first time. She had been asking about it for hours but screamed and cried when we actually sat her up for about 20 seconds. I was told to get her moving as much as possible […]
Posted in Annie on Jun 8th, 2024
So Dr Raskin was overly optimistic about the pain levels. Last night, we got Annie settled into her room on the 19th floor just in time to order dinner, and she fell asleep for Derek shortly before something attached to her beeped, so she only had a half hour nap. After enthusiastically eating 3/4 of […]
Posted in Annie on Jun 7th, 2024
Annie is awake, and we’re hanging out with her in the PACU while the anesthesia works out of her system and we wait for a room to open up. She woke up asking who was going to give her the “shot” (IV) and then was confused that she had slept through everything. She says her […]
Dr Raskin just came back to say that surgery is all done and went exactly as he had hoped. In operation, they were able to test which individual nerves were sending good and bad signals, and he said those tests all made sense with her history and observations of her gait. For example, the nerves […]
Posted in Annie on Jun 7th, 2024
We just got a visit in the waiting room from Dr Rojas, the pediatric rehabilitation doctor at Shirley Ryan who was in the OR with Dr Raskin, the neurosurgeon. She was the one who analyzed the reactions to the nerve stimulation during the surgery to advise him which nerves to cut and who will be […]
Posted in Annie on Jun 7th, 2024
OR nurse just texted us: We wanted to give you an update to let you know that Annie did great going to sleep! Her surgery has started and is progressing as expected. She is doing well!